Little Jorja is one of thousands of kids who could benefit from medicinal cannabis

Little Jorja is one of thousands of kids who could benefit from medicinal cannabis

There are few people Robbie and Carly Emerson trust to hand over their toddler to – but Charlotte Caldwell is one of them.

The Co Tyrone mum who this weekend secured medicinal cannabis for her son Billy, had been supporting the Holywood parents for 18 months as they battle for treatment for their daughter.

And with Charlotte and Billy still exiled in London, the Emersons are now leading the charge in Northern Ireland as the push for full legislation of medicinal cannabis continues.

Charlotte said: “It is people like wee Jorja Emerson who we are fighting for.

Robbie on the panel with Charlotte and Billy as they demand action in London

“Her mum and dad have experienced the very same dismissive attitude to their child’s health as I did with Billy at the same age – abandoned and left to carry on alone.

“I have held Jorja in my arms, Billy has played with Jorja, she is a vital and beautiful little human being.

“But the medical treatment she was given in Northern Ireland a year ago leaves her drugged, sedated and bearly able to stay awake.

“How is that a life for a two-year-old? When other toddlers her age with the same condition are thriving under the care of experts in medicinal cannabis, how is that fair?

Buckled in and ready for action, Jorja on her London flight

“Just like my Billy, wee Jorja deserves to be able to live her best life every day.

“She is one of thousands of children who need to be given the chance.

“I want to meet the Home Secretary and Health Secretary [Jeremy Hunt], urgently this week, to get assurance that not only will Billy’s meds never again be removed, but to call for an urgent review of the overall policy on medical cannabis as it affects everyone who could benefit.

“I’m asking Sajid [Javid]now, I’m in London, I can assure him I’m not going anywhere, until this is now put in place and this medicine is made accessible to all the other children that desperately need it.

Jorja, Robbie and Carly with other families who took the fight for medicinal cannabis to the heart of government in London

“This experience that myself and my little boy have endured in this last week has been horrendous, I do not want, and I will not stand by and let, any other family in our country endure it. It’s absolutely horrific, it’s cruel.

“I want nobody in Government, and nobody who has been impacted by massively outdated laws, to be under any impression that this is job done. This is just the start.

There are few people Robbie and Carly Emerson trust to hand over their toddler to – but Charlotte Caldwell is one of them.

The Co Tyrone mum who this weekend secured medicinal cannabis for her son Billy, had been supporting the Holywood parents for 18 months as they battle for treatment for their daughter.

And with Charlotte and Billy still exiled in London, the Emersons are now leading the charge in Northern Ireland as the push for full legislation of medicinal cannabis continues.

Charlotte said: “It is people like wee Jorja Emerson who we are fighting for.

Robbie on the panel with Charlotte and Billy as they demand action in London

“Her mum and dad have experienced the very same dismissive attitude to their child’s health as I did with Billy at the same age – abandoned and left to carry on alone.

“I have held Jorja in my arms, Billy has played with Jorja, she is a vital and beautiful little human being.

“But the medical treatment she was given in Northern Ireland a year ago leaves her drugged, sedated and bearly able to stay awake.

“How is that a life for a two-year-old? When other toddlers her age with the same condition are thriving under the care of experts in medicinal cannabis, how is that fair?

Buckled in and ready for action, Jorja on her London flight

“Just like my Billy, wee Jorja deserves to be able to live her best life every day.

“She is one of thousands of children who need to be given the chance.

“I want to meet the Home Secretary and Health Secretary [Jeremy Hunt], urgently this week, to get assurance that not only will Billy’s meds never again be removed, but to call for an urgent review of the overall policy on medical cannabis as it affects everyone who could benefit.

“I’m asking Sajid [Javid]now, I’m in London, I can assure him I’m not going anywhere, until this is now put in place and this medicine is made accessible to all the other children that desperately need it.

Jorja, Robbie and Carly with other families who took the fight for medicinal cannabis to the heart of government in London

“This experience that myself and my little boy have endured in this last week has been horrendous, I do not want, and I will not stand by and let, any other family in our country endure it. It’s absolutely horrific, it’s cruel.

“I want nobody in Government, and nobody who has been impacted by massively outdated laws, to be under any impression that this is job done. This is just the start.

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